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It hurts sometimes...

I got a call from Ashley's physical therapist at her school today. She wanted to set up Ashley's IEP (indvidual Education Plan) for this month. We talked for a while and she mentioned to me that her OT (Occupational Therapist) was going to drop Ashley from services after this meeting.

I must have gotten very quiet because the PT asked me if I was all right.

No, I wasn't. They want to stop her therapy? How can that be? In my mother's heart I cried but she's not all right yet...she's not...better. My head knows that she never will be a typical child with a right hand and leg that works properly. For some reason this just stabbed at my heart and I could feel my eyes getting ready to spill tears. All the physical and occupational therapy in the world won't ever make her physically perfect. Ever.

My head knows this, my heart can't bear it.

We talked some more and I told her I'd like to have the OT call me so we could discuss our options. I'm not willing for them to simply stop because she won't progress. The therapy keeps what range of motion she has and she needs it.

I think we may be in for a long meeting on May 18th.


  1. Keep fighting. I've seen this in covering school systems for 14 years. They'll do their level best to weasel out of any responsibility they have in special services of any kind. Be cold and brutal with them - it's the right thing to do.

  2. Oh, I'll fight for her. I've been fighting for her since her sudden arrival 7 years ago.

    I also learned something new. Her OT was moved to another school. So there isn't an OT there any longer. Budget issues I'm assuming.

    Time to go into Mother Lioness mode for my young again.

  3. good thing she's got you in her corner.

  4. Thanks Ana. I've learned to be my children's advocate. Where I wouldn't say BOO to anyone before, I can turn into someone I don't recognize when my children are in need of something.

    Now I just need to learn to put that fighting bit on for myself when I need it. I tend to let things slide with me, not so for my babies.


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