I don't wanna put my baby girl on seizure meds. Especially the medication that we were told would be best for her.
Ashley and I spent some time at Children's Hospital yesterday. We went over the results of her EEG and it wasn't good. In fact it was worse than we'd thought, indicating that there is damage beyond her original stroke. They want to do an MRI on her again. We are also looking at spending a night there and having her hooked up to the EEG for the entire night to monitor her seizure activity. Her EEG shows that she's seizing at night.
So...you can guess how badly I feel about feeling frustrated with her for the past few months as I tried to get her up in the mornings. It wasn't her fault.
We're seeing the head of Neurology, Dr. Nigel Bamford (Yes, he's British) on Tuesday. I'm not filling that prescription until I talk with him.
Keppra anyone?
Ashley and I spent some time at Children's Hospital yesterday. We went over the results of her EEG and it wasn't good. In fact it was worse than we'd thought, indicating that there is damage beyond her original stroke. They want to do an MRI on her again. We are also looking at spending a night there and having her hooked up to the EEG for the entire night to monitor her seizure activity. Her EEG shows that she's seizing at night.
So...you can guess how badly I feel about feeling frustrated with her for the past few months as I tried to get her up in the mornings. It wasn't her fault.
We're seeing the head of Neurology, Dr. Nigel Bamford (Yes, he's British) on Tuesday. I'm not filling that prescription until I talk with him.
Keppra anyone?
Oh Pammy...
ReplyDelete/me gives you a huge hug.
I don't know much about Keppra but I will ask around. My two seizure-prone loved ones take Tegretol.
You are such a good mommy. Please be sure to take good care of you as well.
Much love and hugs to you and yours.