Sunday, May 19, 2013

Shared Struggles

I'm home from church today.... I was greatly looking forward to going, for two reasons; One, my husband is speaking and two, my older sister Cheri is coming. It would have been wonderful.

However, my place is here at home, keeping my child safe and watching over her. There is no manual for us, as the parents of this very unique and troubled child. There just isn't. We do what we think is right, we pray and pray and pray for guidance. And sometimes....we wonder where the 'joy in our posterity' is to be found. Struggles overwhelm us, as we try to find that joy in small moments. Sadly, they are few and far between. Still, we try.

Last night Lance and I sat down with some very dear friends of ours. Their struggles are difficult and some of theirs are like ours, so we had much to talk about. It felt wonderful to talk with someone who understands, someone who is going through the parenting trenches with children who have special needs, and with a typical child thrown in for fun. Oh the fun! It was cathartic to talk about it with a couple who gets it. And although we can't know the pain and heartbreak equal to theirs, or theirs to ours, we laughed and tried our best not to cry as we spoke about what is happening. Ok, it might just have been me that was trying not to cry. I think I managed quite well. It's a measure of how far I've come that I can even speak about it without dissolving into a slobbering, weeping mess. Go me. Plus, I don't want to end up in the hospital again. I'm pretty sure what happened to me was a result of the extraordinary stress I've been under. The doctors said it was a very rare occurrence, but I'm unwilling to take that chance. Remaining calm and centering myself with prayer seems to help. It's not easy, but I'm doing my best

Because they have such complicated and busy lives, as do we, there was so much to catch up on. When I pulled my shirt aside, my friend saw I was hooked up to a heart monitor. She threw up her hands and said, "OOOOH, We have SOOOO much to talk about!!" And she was right. Her husband had undergone some scary surgery, my husband was just coming out of three surgeries and ten months of horror, on top of our regularly scheduled programming. .

Sharing burdens lightens them, even if it's just talking about them. So at times we have felt like this poor donkey. but because we have so many people that lift us up in prayer, so many people that share our burdens, we are able to keep our feet planted firmly on the ground and move forward with faith.

Thank you....you know who you are.

Saturday, May 11, 2013

Mother's Day Is Not My Idea

I'm going to be brutally honest with all of you. Well, all two of you that may have continued to read my blog. I hope that once you read this, you will continue to be my friends and/or family.

I DO NOT LIKE MOTHER'S DAY


I really don't. Not anymore. Oh, there were times I loved the celebration of my being a mom, when my four offspring were younger. I remember little handprints on papers in bright colors, crafty mother's day gifts from elementary school that my babies were dying to give to me. Some couldn't wait until Sunday and I was given those gifts as they climbed down from their yellow school buses the Friday before a Mother's Day. Eyes bright with the joy of giving me something they had made themselves.

There were breakfasts in bed. One Mother's Day my two youngest girls slaved in the kitchen and brought me a plate of food that did not in fact look like something edible. Since they knew my favorite color was pink, they used some food coloring on the scrambled eggs and the french toast. There wasn't fruit in the eggs or raspberries on top--just food coloring. The mess in the kitchen was of epic proportions, as has often been the case on many a mother's day across the world. I didn't mind cleaning it up. I've cleaned up worse things.

Over the years, as some of the kids have moved from diapers to tricycles, from hula hoops to makeup and then on to what passes for adulthood, I have become a bit jaded at times about parenthood. This in no way means that I love my children any less. Anyone around me knows that I love each and every one of them. However, having said that, there is still a reality that cuts deeply into my heart. They do not love me in return.. Not in the way that I love them---and I can't expect them to. I remember every boo boo that I kissed, I remember every night I slept next to a hospital bed or health care worker or school I went to battle against for the sake of my child. My memories of holding precious newborns, nuzzling the necks of my toddlers, wanting to wake them up in the middle of the night just to play with them, are all so very fresh in my mind.

However, they do not hold the same memories that I do.

“Through the blur, I wondered if I was alone or if other parents felt the same way I did - that everything involving our children was painful in some way. The emotions, whether they were joy, sorrow, love or pride, were so deep and sharp that in the end they left you raw, exposed and yes, in pain. The human heart was not designed to beat outside the human body and yet, each child represented just that - a parent's heart bared, beating forever outside its chest.” ― Debra Ginsberg

There have been times during their teenage years that I have wanted to run away. I remember my mother telling me that she had wanted to leave once---go alone to a motel, soak in a tub and just sleep. But this was when my older sister was gravely ill for years, she had three other small children and no one in her family--extended or otherwise---was there to give her any relief. Mom didn't want to leave when we were teenagers, because we never gave her any problems. We were good kids. Mom ruled the roost with an iron fist, and there have been times I wondered if our obedience came from fear of consequences or a simple knowledge of right from wrong. I'd like to think it was the latter, but I know it was sprinkled with a bit of the former. Mom loved her grandchildren with an intensity rivaling the sun at midday. I'm grateful to her for her love and advice as I became a mom once, twice, thrice and then a fourth time. When I miscarried, she cried with me. When I faced numerous illnesses and hospitalizations with my babies, she was always there. She was a blessing in my life.

We taught our babies how to pray, to have faith and to be kind. Do unto others, the golden rule and to be compassionate. I honestly remember doing these things. I do. But you know what? It must not have stuck with them. Not with all of them, at any rate. Their daddy was in the hospital for three surgeries in the past 9 months. They didn't come to see him. I nearly died and spent five days in the hospital recently. They never came to my beside.

Now Mother's Day is on Sunday. One child texted about coming to dinner. Really? That's nice. No, it's not. I'm not making dinner. In fact I do not plan to be here. I do not want contrived moments, false protestations of a love that is clearly not there in their actions or treatment of either me or their father. Perhaps I'm being petty, you may think. Well, that's ok. It might be true.

What I know, and what I feel is this: You cannot make someone feel something that they clearly do not feel. As is often said, actions speak louder than words. What I also know is that I do not have to put myself in a place where I am continually hurt. There is too much stress in my over-crowded life to keep feeling this hurt---but I do not know how to set aside my love for them in order to make it not hurt. When I see pictures of other mom's with their children, when I hear them say their children have become their best friends, I get a little catch in my throat.

Margaret Atwood “No mother is ever, completely, a child's idea of what a mother should be, and I suppose it works the other way around as well. But despite everything, we didn't do too badly by one another, we did as well as most.” ― Margaret Atwood, The Handmaid's Tale


So perhaps I am not what their idea of what a mother should have been, and they are not my idea of what grown children should be like. I suppose we will all have to live with those emotions. Thankfully, I won't have to live with them as long.

Happy Mother's Day everyone...

Tuesday, April 30, 2013

I Have a Secret to Confess.....

This is David Tennant, born David MacDonald. He is the tenth incarnation of Dr. Who, a show I previously did not know existed.

Now my life is complete. I have become..... A Whovian.



Dr. Who is gearing up for it's 50th Anniversary show. I can't wait.

Curse you, David Tennant. I can't seem to quit you. Em, what I mean to say is, thanks for the lovely distraction you give me from the struggles of day to day life. I tell my children we should get a Tardis. They roll their eyes. It's ok. Not everyone can love a show as much as another person. I think it's good to take a mental vacation sometimes.

David isn't just some fly-by-night actor, oh no. This gem of a man is a critically acclaimed actor, part of the RSC, the Royal Shakespeare Club. His Hamlet will bring you to tears. His bit on the Catherine Tate Show as the ghost of Christmas present, is one of my favorite pieces, and not just because he dances. Ok, that's partly it, but still. He's amazingly versatile. And what a wonderful family man. He adopted the son of his wife and they have had two more children together.

One day I hope to see him perform live in a play. This means I'll have to start saving my pennies for a trip to England.

And here is one of my favorite clips of Mr. David Tennant.

Friday, April 26, 2013

Beach Therapy a Little Too Soon

It's been a busy week here for Spring Break. Ashley had her surgery on Monday at Children's. It went well. They lengthened one tendon and moved two other tendons around in her arm. It's going to help her hand not contract as much and hopefully give her more use of it. It's been a bit difficult to control her pain, but I think we're doing much better now.

I had oral surgery on Tuesday. Glad that pain is over. I'm doing quite well today. Yesterday we decided to brave it and take the ferry to Kingston. We were planning on staying a couple of days. The weather has been gorgeous! However, once there we realized that Ashley wasn't up to staying, so we spent the day and part of the evening. She slept a bit due to the pain meds. We had a campfire and made hobo stew and s'mores. Allison brought her boyfriend, Andy, for his first Kingston Beach Cabin experience. It was lovely.

And here is a photo collage of our day. The moon was incredibly huge... Ah...beach therapy. There's nothing like it.