When my Ashley Rose was born nine years ago, she was nearly two months premature and had suffered a stroke. She was diagnosed with Hemiplegic infantile cerebral palsy, among other things. This means she was having seizures and couldn't use the right side of her body.
We were put on a waiting list for some services (funds) that would have allowed us to get Respite (care for her so we could take a break), funding for therapies and other services and funding for medical bills.
Today I got a letter in the mail saying that Ashley's name had come to the top of the waiting list and they wanted to evaluate her. Mmm-hmmm. They evaluate her each year as it is to keep her on the DSHS Family services list which helps us pay for the braces for her leg. It's like they suddenly expect her CP to have cured itself.
Not that I don't believe in miracles--I do. But you know.....
The reason I'm excited about this particular letter is because last week when we were at Children's Hospital, a therapy called Constraint Induced Therapy, is now being offered. Nine years ago I was the one who told them about this therapy that was developed by a doctor in Alabama. At that point it was only being used on adult stroke victims---but I wanted them to try it on my Ashley Rose. They weren't doing it then.
Now they are. They are hosting Constraint Induced Therapy camp over the summer. They take a child like Ashley and put a cast on her good arm. This forces her to use her bad side.
It is very expensive therapy and quite time consuming. For a three week period we would be at the hospital for three to four hours a day.
Now we're on another waiting list. The waiting list for therapy camp.
I just hope it doesn't take another nine years.
We were put on a waiting list for some services (funds) that would have allowed us to get Respite (care for her so we could take a break), funding for therapies and other services and funding for medical bills.
Today I got a letter in the mail saying that Ashley's name had come to the top of the waiting list and they wanted to evaluate her. Mmm-hmmm. They evaluate her each year as it is to keep her on the DSHS Family services list which helps us pay for the braces for her leg. It's like they suddenly expect her CP to have cured itself.
Not that I don't believe in miracles--I do. But you know.....
The reason I'm excited about this particular letter is because last week when we were at Children's Hospital, a therapy called Constraint Induced Therapy, is now being offered. Nine years ago I was the one who told them about this therapy that was developed by a doctor in Alabama. At that point it was only being used on adult stroke victims---but I wanted them to try it on my Ashley Rose. They weren't doing it then.
Now they are. They are hosting Constraint Induced Therapy camp over the summer. They take a child like Ashley and put a cast on her good arm. This forces her to use her bad side.
It is very expensive therapy and quite time consuming. For a three week period we would be at the hospital for three to four hours a day.
Now we're on another waiting list. The waiting list for therapy camp.
I just hope it doesn't take another nine years.
Oh Pam, that is exciting. Major Mojo and Prayers from my part of the earth. Huggles to both Ashley and you!
ReplyDeleteThanks Annalee. It is exciting and nerve-wracking at the same time. If they do award her this service, then we will be able to get this specialized therapy for her.
ReplyDeleteOh.. wow. What a long road. Crossing my fingers it doesn't take another 9 years. (hugs)
ReplyDeleteOhmommy, thank you! It would mean the world to me if they do approve her---and if they don't I might just have to have a big lemonade stand to raise the funds! :)
ReplyDeleteMy prayers too.
ReplyDeleteKind of like the lazy eye thing... Good luck with the list!! ;)
ReplyDelete