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Seizure Day

Yesterday started out normal enough but it sure didn't end that way.

Because we're on hubby's schedule--and he works til midnight each night--we don't go to bed before 1 a.m. most nights. Even the kids. This schedule works for us in the summer better than during the school year of course. Due to the fact that we go to bed so late, we're rarely up before 9 in the morning.

I got up bit before 9 and headed to the bathroom. The second I was out of my bed, Ashley climbed in next to her daddy for a daddy-daughter snuggle.

"Hey! No fair taking my place! Get out of there!"

She just grinned at me and slid under the covers next to her Daddy.

The next thing I knew, Lance was yelling my name and our bedroom door was flung open. He thought I'd gone downstairs and I couldn't understand why he was yelling. If you know my husband, you know he doesn't yell.

He had good reason to yell. Ashley was on the bed in the throes of a horrible grand mal seizure.

Her lips were turning blue and I admit that I lost it. I just....lost it.

The paramedics came.

We ended up at Mary Bridge Children's Hospital in Tacoma. The ER doc there consulted with her Neuro from Children's in Seattle. The Neuro clinic will call us on Monday to set up an appointment and testing.

Five years ago when we weaned her off seizure meds, the doctor warned us that as Ashley got older and began to enter puberty that there was a 75% chance that her seizures would return---with a vengeance.

Well, they did. Now we have some decisions to make.

I'm so grateful that Ashley wasn't in the bath alone or walking down the stairs when this happened.

I have no words to describe the feeling watching my baby girl with her eyes wide open but not seeing, her body jerking back and forth and all we could do is hold her and call her name.

My heart hurts...

Comments

  1. Anonymous4:53 PM

    Pam, our prayers are with you and your family. Hope Ashley's doing better. Keep us updated

    ReplyDelete
  2. Tina@ SendChocolateNow11:59 PM

    I am wiping tears. Damned doctors, I hope they get their act together. I read the above post, too... hang in there, and just...try to have peace.

    T.

    ReplyDelete
  3. Unknown12:45 AM

    Thank you Steve, it's greatly appreciated.

    TLC I will have peace. I know it will come. I just got frustrated today. Normally I don't get all bent about this---but because this is serious and could damage her further I am going to be like a dog with a bone until they acquiesce to my demands.

    Thank you for your kindness.

    ReplyDelete

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